Linda's story...

Sometimes the smallest book tells the biggest story. 
Linda is a sweet, unassuming lady.  She speaks softly and won't be found at happy hour going on about her day.  A local to Northeastern Pennsylvania, Linda attends meetings for the Pancreatic Cancer Action Network.  She wears her purple bracelet and listens to the groups plans. 
Linda is a survivor.  She tackled Pancreatic Cancer with the strength of a linebacker and grace of a ballerina...along with a little faith and luck.
Her journey began in the hospital.  She mentioned some recent suspicious back and stomach pains to her co-workers at an area hospital.  Looking back, Linda probably wouldn't have looked into it, but "someone, somewhere was telling her to get it checked".
A common maze with diagnosis of Pancreatic Cancer is its capacity to mimic other problems.  Linda thought her pain was some sort of gall bladder attack.  Luckily, in February of 2003, she got an ultrasound and found the PC right away.  Unfortunately, diagnosis doesn't make it go away.
Once you know what you're dealing with, more variables enter your world.  What is it?  What do I do?  Will I live?  Am I with the right doctor?  These questions can't always be answered in time.  Linda had only just heard of PC shortly before her own diagnosis.  Learning more certainly didn't shed a positive light on her chances.  Her own primary care doctor told her husband to get her affairs in order as she won't be around after Christmas. 
"I could give up and lay there, but no."
Linda had surgery in June of 2003.  She then had 6 weeks of continuous chemotherapy and radiation, which she reflected upon as not being too bad!  Her main issue with treatment was exhaustion, but she maintained a good appetite. 
Geisinger Health System in Danville proved to be a perfect fit for Linda.  She gives them the highest accolades.  A shy smile sweeps her face as she remembers her doctor calling her personally.
Her faith and family gave her strength and support through her journey.  Sadly, Linda lost her husband shortly after. 
She now works full time as a unit secretary at a local hospital.  Her day brightens from meeting and talking with patients.   Linda gets a sense of hope from participating in PanCan events such as the survivor walk. 
A suggestion from a survivor:  "Don't ignore it, get further testing".   She emphasizes getting checked if you are worried or think something may be wrong. 
Willpower, courage and prayers helped Linda pen a happy ending for all of us to learn from. 

Dr. Jonathan Brody

“It’s an amazing, intellectual puzzle that I want to solve”.

The puzzle Dr. Brody refers to is Pancreatic Cancer, which he and his team at Jefferson Hospital have recently been acknowledged for in their efforts to put more pieces on the table.

The American Cancer Society and the Pancreatic Cancer Action Network have just awarded Dr. Brody with considerable funding primarily for his “HuR” work.

Dr. Brody’s journey into the world of Pancreatic Cancer began in music. A percussionist in his youth, Jonathan went to college on a music scholarship. As these years went by, he realized that a career in music was few and far between, and decided to shift gears. He chose to go to graduate school for a PhD, and actually skip medical school.

“It felt unacceptable to me to tell patients that they have five months to live, and that’s it”. By going into the research department, he felt he could do more by figuring out ways to cure the disease, as opposed to treating the patients after the fact.

After his schooling was completed, he was recruited by Dr. Yeo at Jefferson in Philadelphia to join his team.

His current work can be explained most easily the way he explains it himself, in an analogy to a car.

Dr. Brody compares a Pancreatic Cancer cell to a driver in a car for his HuR work. Basically, a Pancreatic Cancer cell utilizes an HuR pathway to survive, much like a driver would use an airbag to survive in an accident.

(In our analysis, the driver is bad, and we want him to be killed in the accident. Remember, the driver is a bad pancreatic cancer cell, so don’t feel bad!)

This work is finding a way to eliminate the HuR in patients depending on their particular status and thus give the cancer cells less of a chance to survive.

This work is only being researched at Jefferson Hospital, but these doctors have a community of researchers at MIT, Johns Hopkins, Georgetown and more.

Dr. Brody prefers to take his work from “bench to bedside” regarding trials. This skips the animal testing phase when possible, and starts helping patients right out of the lab almost.

Dr. Brody points our that there are a number of variables as to why Pancreatic Cancer progress may seem slower than other research and cure potential:

1) Of course, funding. Despite this disease affecting over 80,000 people a year, it only received 2% of the funds allotted for cancer research.

2) Early detection strategies are not prominent. There isn’t a tell tale test that can diagnose at stage one, or earlier.

3) The turnover for survivors isn’t set in stone; meaning, we don’t always know they’re out there, and the public doesn’t know that they can survive.

Deep down, Dr. Brody is a do-gooder. For a second, he playfully explained his role in the pancreatic cancer world as him being “an investigator trying to solve a murder”.

Since coming to Jefferson, he has started to participate in some Pan Can events, and even gotten to know some of the survivors…a bit out of the ordinary for the lab team.

So who knows, if Mike Schmidt can end up in the Baseball Hall of Fame after going to college for basketball, then maybe a musician can cure cancer.

Jim's Story...

Jim as a whole is one of a kind. We could easily take one component of him and find a million of the same.
He's a successful business man. Not the only one on earth.
His business is his own. Surely we all know someone similar.
He's a family man. Ok, so are a lot of men.
He has dedicated a part of his business time to charity. Well, many do, in fact some are obligated.
The striking thing about Jim is a combination of the above, his modesty and his propensity to shift the credit to anyone but himself. His simplistic approach to making a difference is exemplified in his short answer to why he does what he does, "why not?"
Jim Barrett is the man in charge at Road Scholar Transport, a North Eastern Pennsylvania based trucking company that reaches as far as Arizona. He welcomed us to his cozy office, and pointed out some favorite photos and awards, which brought a smile to his face. Fully immersed in his industry, he even has stick shift grid cuff links.
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Jim's role in the world of Pancreatic Cancer is not one of a patient, doctor or one who's lost a loved one to the disease. He helps raise awareness in a sort of passive aggressive manner. Passive in the sense that he himself isn't running up to you and telling facts and information. Aggressive in the sense of the mere size of his awareness medium.
For the past few years, Jim has been using his trucks as a gigantic multi-sided poster to gain attention for what he calls "the orphan causes". Wrapping an entire tractor trailer in the color of the cause along with it's logo and imagery, he sends his trucks around the country to casually get a cause in need to the forefront of your brain. When is the last time you were stuck in traffic with a tractor trailer and not noticed what was written on it??
"It's hard for these politicians to ignore an 80 ft billboard". It's hard for anyone to. Why did he decide on Pancreatic Cancer as one of the 16 plus "cause" trucks? Simply because of his communication with Taryn Jones, affiliate coordinator for the Scranton PanCan group.
He feels that decorating the trucks "gives a voice to the voiceless".
Jim's favorite book? The Little Engine that could.

Check back for more of Jim's story, or come to the "Cheers to a Cure" event at Whistles Bar in Scranton on Nov 13th to see others stories.

Mark's story...

Taryn and I met Mark a couple of weeks ago at his place of work, The East Mountain Inn. It was a dreary day with people shaking off umbrellas walking over to check into their rooms, and servers setting up an empty dining room waiting for their dinner guests to arrive.
Mark is the Executive Chef of this popular hotel, and offered to put on his "whites" for our interview and photo shoot.








Mark differs from most of the survivors we have met thus far. He's one of us. He's a child of the 70's, he may not have gone to the gym religiously, he's had a drink or two in his life and he loves animals. He works. He spends time doing what he likes.
Maybe this everyday man mentality provided him the casual strength to make it this far since his diagnosis. Never stopping for too long, you'd think he had just beat the common cold as opposed to one of the most deadly cancers.



Check back for more of Mark's story, or come out to the Cheers to a Cure event in Scranton, Nov. 13th at Whistles. We may host a second event in Philadelphia as well.

On the horizon....

Taryn and I have some wonderful things happening for "A Face to the Name". First, we have been invited to a symposium at Jefferson Hospital in Center City Philadelphia by Dr Charles Yeo. He will actually mention us from the stage, and include our information in the packet handed out to attendees.
Second, we will be showing the ongoing project at an awareness event in Scranton, PA. This is one of Taryn's events, named "Cheers to a Cure". This is a happy hour hosted by Whistles bar.
Lastly, NBC 10 Philadelphia has shown interest in our project. Thanks to our late friend Andrea Corey, her sister and Renee Chanault-Fattah have started looking for a location for a possible exhibit in Philadelphia, and possibly show our story as a news feature.
More stories to come soon!
Thank you all!!

Share Your Story With Us

A Face to the Name: Personal Journeys of Pancreatic Cancer Photo Exhibition was launched by photographer Eileen Jantz and advocate Taryn Jones after being touched by pancreatic cancer. The goal of the exhibit is to share the stories of pancreatic cancer patients, family members, care-givers and health professionals who have been touched by the disease, through black and white photography. Connecting the beauty of photographs to raise awareness about the impact pancreatic cancer has had on the lives of thousands of individuals each year, the exhibit will premier in Scranton this November (Pancreatic Cancer Awareness Month) with hopes to travel throughout different communities throughout 2010-2011.

Photos will be highlighted at the Cheers! To a Cure event in Scranton on November 13th!

We are currently accepting submissions from people in the Philadelphia and Scranton areas who are interested in being featured for 2010's Pancreatic Cancer Awarness Month. We are also seeking individuals or businesses who may be interested in hosting the exhibition in 2010. To learn more or to share your story please e-mail Taryn Jones or Eileen Jantz at
touchedbypc@gmail.com

Please note: All photos will be tastefully presented, subject-sensitive with a photojournalism approach. All photos will be displayed in black and white photography with accompanying descriptions of each subject's personal story. We are looking for subjects to tell the story of the following: Patient, Daughter, Son, Spouse, Health Professional, Friend etc.

Dr. Weijing Sun

During a visit to the Perelman Center at the University of Pennsylvania with a Pancreatic Cancer survivor, Dr. Weijing Sun reviewed bloodwork and shared some of his thoughts on the disease. He has a shy, sweet sense of humor which exudes modesty from such an accomplished doctor. Sun is the Director of G.I. oncology at Penn.
Dr. Sun regretfully admitted that there is no good screening for Pancreatic Cancer. He felt that at this point, we are unable to set definite parameters or guidelines regarding when, why and who should be screened, and furthermore, how.
A regular ultrasound has no clear ruling for pancreatic cancer, and thus, an Endoscopic Ultrasound may be the most accurate test according to Sun.
His perfect blend of a simple sense of humor, and straightforward medical fact make any news have a glimmer of hope.